***LJ is moving mountains! See the amazing event below!***
About ANGELMAN SYNDROME
Angelman Syndrome
Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births or 500,000 people worldwide. It is caused by a loss of function of the UBE3A gene in the 15th chromosome derived from the mother.
Angelman syndrome shares symptoms and characteristics with other disorders including autism, cerebral palsy and Prader-Willi syndrome. Due to the common characteristics, misdiagnosis occurs often.People with Angelman syndrome have developmental problems that become noticeable by the age of 6 – 12 months. Other common signs and symptoms usually appear in early childhood like walking and balance disorders, gastrointestinal issues, seizures and little to no speech. Despite these symptoms, people with Angelman syndrome have an overall happy and excitable demeanor. An individual with AS will light up a room with their smile and laughter.For more information about Agelman Syndrome: https://www.angelman.org/what-is-as/symptoms-and-causes/https://www.angelman.org/what-is-as/
Our Mission
LJ’s Wings was established in honor of our son, LJ, an amazing child with a big heart, and an even bigger smile! LJ's Wings strives to build awareness and support for LJ and others dealing with the rare diagnosis known as Angelman Syndrome. We fight to get supportive legislation passed, to make special needs aids and financial assistance more attainable, and to support the Angelman Syndrome community as a whole.
Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births or 500,000 people worldwide. It is caused by a loss of function of the UBE3A gene in the 15th chromosome derived from the mother.
Angelman syndrome shares symptoms and characteristics with other disorders including autism, cerebral palsy and Prader-Willi syndrome. Due to the common characteristics, misdiagnosis occurs often.People with Angelman syndrome have developmental problems that become noticeable by the age of 6 – 12 months. Other common signs and symptoms usually appear in early childhood like walking and balance disorders, gastrointestinal issues, seizures and little to no speech. Despite these symptoms, people with Angelman syndrome have an overall happy and excitable demeanor. An individual with AS will light up a room with their smile and laughter.For more information about Agelman Syndrome: https://www.angelman.org/what-is-as/symptoms-and-causes/https://www.angelman.org/what-is-as/
Our GOALS
There are many challenges that come with caring for someone with special needs - financial to emotional, and everything in between. LJ's Wings Foundation strives to help families deal with these frustrations in a variety of ways including, but not limited to legislative recognition for increased financial assistance; fighting to increase insurance coverage for special needs equipment; and assistance/more assistance with caregiver affordability, as many of these caregivers need to be medically trained to handle the special physical needs of those they are caring for. LJ's Wings also works to provide emotional assistance, via awareness and support groups/activities.
Volunteer Opportunities
If you are or are not in a position to donate financially, but want to be involved, or maybe you want to do both, please contact us!! There are many ways to help. We very much appreciate any, and all support!