About Us​

Our lives were forever changed on March 5, 2020, when we received LJ’s Angelman Syndrome diagnosis. On the drive home from that genetic appointment, through tears and uncertainty, we knew LJ was destined to move mountains. From that day forward, we promised him that we would be his voice and advocate—not only for him, but for all individuals living with Angelman Syndrome.

This journey has shown us how challenging it can be to secure even the most basic essentials, such as a safety bed or adaptive stroller, through insurance. We have faced denials, appeals, and countless obstacles. Families like ours deserve better.

LJ’s Wings was created to raise awareness and build support for LJ and others with Angelman Syndrome. We are committed to advocating for stronger legislation, improving access to essential resources and financial assistance, and fostering a supportive community for every family touched by Angelman Syndrome.